The place for challenging and provocative thought
A bi-weekly newsletter sharing ideas, insights, personal stories and recommendations for people and families with disabilities on a wide range of issues. Also included are links to articles across the country to keep you informed on the latest news from the disability community.
“Oh God, why did you do this to my child? Why did you do this to me?” I have asked God those questions many times over the years, and I’m confident virtually every special needs parent, particularly of children more severely affected, has asked as well. It is completely natural to seek an explanation to what […]
Raising a child, or caring for an adult, with disabilities in a responsibility for which very few people are trained. The stress and physical requirements can be daunting, as sleepless nights and ongoing frustrations eventually take their toll. Nonetheless, many parents and amateur caregivers will try to go it alone, as though asking for help […]
As discussed in our “Martyrdom Is Not Sexy” post, one of the most important and life changing events for people and families with disabilities is getting help at home. Over the next few weeks we will talk about different types of in home support, both natural and structured. Our focus here is on what seems to […]
When our twins were diagnosed with severe intellectual disabilities and autism at the age of two, we were shocked. However, by the time they were four we were determined to not fall into the trap of many special needs parents…naïveté. For years I have met parents of special needs children who fail to plan, or […]
“God, Sex, and Disabilities” was the title of the book I was pushing with a publisher over lunch. He laughed at the name and said “It’s catchy, but you need to be more direct. People want to know specifically what to do and how to do it. They want lists.” While I believe we are […]
The following except is from a page I authored in the Annual Report to the President of the United States in 2011, as part of the President’s Committee for People with Intellectual Disabilities (PCPID): “When my twins were 8 years old, the stress of raising two children who had constant meltdowns, bit and scratched everyone […]